To collect and scrutinize millions of Americans’ health data, U.S. health secretary Robert F. Kennedy Jr. aims to work with state organizations that help health systems share medical records. In Nebraska, millions in federal dollars has flowed into one nonprofit cooperating with Kennedy’s project.
The state organizations followed up with a pitch in October for a new surveillance system that would give the federal health department “real-time, 24-hour data feeds on opioid and chronic disease trends” within a year, according to a presentation reviewed by KFF Health News. Under the proposal, HHS would get data from 90% of the population’s medical records by 2028.’
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After 31 years at the CDC overseeing public health surveillance, emerging infectious diseases, and the influenza divisions, Jernigan thought the solution was simple. The secretary could work with researchers to obtain huge databases pulled from health systems nationwide and maintained by major electronic health records companies.
Those databases are deidentified, meaning they don’t include patient names or other information that can identify individuals. Jernigan said Kennedy didn’t seem interested.’
Wants all of our medical data, but only interested if PII is included–imagine that.
Wants all of our medical data, but only interested if PII is included–imagine that.